Well, we have our appointment set at Johns Hopkins for July 6th at 9:15 a.m. It will be really good to have the doctor that writes the textbooks on Exstrophy take a look at Robbie. Now we are checking to see if we are still going out June 25-26 for the Exstrophy Picnic, I think we will. With the trip out east we will head up to New Jersey for a little mini-vacation while we are out there and stay with Mimi and see Uncle Jer, Aunt Mel, Cousins Bryce, Caden and Clara.
We go back this Wednesday to Children's Mercy to get his stitches taken out of his head. This will hopefully be the last time we see Dr. Hornug and the Neurosurgery team and have to deal with the Encepholacelle.
You guys are amazing in not wasting any time in getting to the top of the Exstrophy experts. Our thoughts, prayers and love continue to be with you all.
ReplyDeleteLove You All!!!