Robbie Loves Being Home

Robbie had a good first night in his own bed and let Mom and Dad sleep a little more than the night before. He had to be woken up to eat, which was a first for him, and very nice for us. The dogs didn't quite know what the heck was going on and what that noise was when he was crying, but they are starting to realize what is going on and getting some really good sniffs of the little guy.

It felt so good to be in our own house last night and to have Robbie where he belongs. We have been finding out a lot more about bladder exstrophy and sent some pictures of his bladder to the leader in this field at Johns Hopkins, Dr. Gearhart. He said that he has a "Nice, nice bladder" and some other things to help take care of it. Dr. Gearhart and Dr. Murphy from Children's Mercy are acquaintances and he said we are in very good hands here at CMH, which made us feel so much better.

We had a blowout last night, one of the worst, but were able to get a new bag on there with the help of a team of people: Saree, Mimi, Gmo, Uncle Rog and myself. If we could only have 10 hands helping everytime we would be just fine.