Update: Friday, May 21st

First of all we would like to thank everyone for their prayers, kind words and generosity. We always knew we had good people in our lives, we just never knew that we had this many extraordinary people around us.

Today was another pretty good day for Robbie. He was able to up his eating amount from 10 mL to 20 mL of milk per session. One thing that we learned about him today is that when he figures out how to eat, which he is still learning, he can knock back a bottle in no time. He obviously has seen his Dad eat and knows he better get his food while he can. Another thing we learned is that he is a very gassy little guy. He has to burped a couple times each feeding and even just sporadically during the day to relieve some pressure. The last thing we learned today is that even though he has a bag, he can still pass gas just like his uncles.

I was able to go to school today and when I got back to his pod I was greeted by Saree with, "You need to get back here now so you can learn how to change his bag," then with, "how was your day?" He was pretty fussy most of the afternoon but I would be too if I had the following things happening all at once: 1) His diaper was wet, 2) He needed to burp, 3) His IV went bad in his hand, and 4) His bag was seeping everywhere. So, once he got his diaper changed, a big solid, juicy burp and spit up, his IV taken out, and his bag changed he was good to go.

Saree found out late this morning that his next surgery to remove the thing from his head will be Monday morning at 8:30 a.m. We are hoping that this will be the last surgery until we do the bladder and anus surgeries in about 6 months. He deserves a break from all these surgeries.

Again, we can't thank everyone enough for all the support we have gotten this week and just know that we are so grateful. There is no way we will ever be able to repay everyone, but we want you to know that we feel the love everyone is sending our way and we truely appreciate it.