Today was our most event filled day in quite some time. Robbie was asleep through most of the day but he had to get a feeding tube put in so he could start getting some real food on his stomach instead of the TPN. The tube feeds him for 12 hours during the night so hopefully we can start to get on a normal routine with bowel movements and get him used to food on his stomach. Once we get used to it and in a routine he can start eating baby food and then work his way up to solids food.
Saree & I also celebrated our 5th anniversary yesterday and Mimi was able to stay with Robbie so we could go out to dinner. We went to Little Italy here in Baltimore, which despite where it's located, really did have an Italian feel to the area. It was a really good night and we are so grateful that we have Mimi here to help give us breaks on the weekends.
Robbie is still battling with a slight fever and they might have found what was causing it, they found bacteria in his urine sample and now they are trying to see what antibiotic will work the best at getting rid of it. They don't want to start him on an antibiotic until they figure out the right one in the lab first. Robbie is doing really good though, just being as still and patient as anyone that has come through here at his age.
We are now officially two weeks into this six week recovery and I couldn't be more proud of Robbie and Saree for how they are holding up through this. Everyone we talked to said that weeks three and four are by far the hardest weeks and we can definitely see why they say that. The first two weeks went pretty quick and the last two weeks you can see the finish line, but these middle two weeks will really test your patience and will power. We know that as a family we will get through this and rely on each other to help all three of us through.
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