Today was a pretty good day overall for Robbie. The cleanout process has been working as we have changed about eight diapers today and hopefully he is starting to get back to normal. Because of cleaning him out, he hasn't been able to have his normal feeds and is probably starting to get a little hungry. Also, because of the amount of laxative and no feeds his stomach seems to be cramping a little bit and causing some discomfort. Overall though he is doing really well and has actually rested a little bit today.
We met with the Infectious Disease (ID) team today because of all of fevers and infections that he has gotten and their consensus was that the infection was caused by the amount of foreign products in his body (PICC line, fixator, SP tubes, etc...) and that right now if we could keep the PICC line out of him would probably be best. Our only concern with not having a PICC line is that they have to push all his meds through his IV and especially the Valium burns when it goes in. We think that if we are just going to be here for the six weeks that we will try to just keep the IV only and start to give some of the meds orally. If we would have to stay longer than the six weeks, then we will probably put the PICC line back in, just for the ease of administering meds. Dr. Sponseller will be the one who decides if we are going to be here for six weeks or longer. I don't know what Dr. Gearhart was talking about when he said at four weeks they take a look at the xray and then decide, because they don't do that until six weeks. He was just wanting to get us out of here sooner I guess.
Everything is going pretty smoothly right now and our two big concerns with Robbie are him pulling out his IV because we don't have that many more veins to work with and him starting to really want to move a lot. I think he has realized that he has been weighted to a bed for 30 days and wants to get the heck out of here and get back into his wagon and go for a ride.
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