Tuesday was a day that kept us on our toes and on edge all day. We finally got rid of the fever and got our little guys personality back all morning but by mid-afternoon the fever was back. Along with the fever we found out that he had a bacteria in his gut from all the antibiotics that he is on. This bacteria caused us quite an adventure from about 8:00 p.m. - 12:00 a.m. as we had to change his bedding six times in that time frame. Twice was because he threw up all over the place and four times because he pooped all over the place. Once he got everything out of his system though he slept really well though.
We are now trying to figure out his nutrition plan since he is completely off the TPN. The goal is for him to get 40 cc's (1.5 ounces) per hour for 24 hours. We are currently only doing about 10 cc's an hour for 12 hours, so we have a ways to go. I hope that we can get him to this goal sooner than later, just to make sure he is getting the proper nutrition he needs to recover more quickly. We also have to make sure that his Vitamin D levels are high because they have had a few kids recently that have broken bones once they got home because of the lack of the vitamin.
Robbie is doing well though and really has his personality back. The only problems with him being himself is that he hates being weighted to the bed and all he wants to do is go outside. We are lucky enough to have a window by the bed so we get some sunshine on us, but he constantly points at the window and grunts, just like he was at home and wanting nothing but going outside and riding on his buggy or wagon.
No comments:
Post a Comment