Baltimore: Day 22 (August 8)

Sorry for not posting anything yesterday, but we had a really busy day on Sunday and even busier on Monday. Robbie has been fighting a fever the last three days and they have moved from an antibiotic they were sure would work on his Urinary Tract Infection to a third antibiotic that will now just fight off any bacterial infection in the entire body. It has seemed to work, because his fever is gone for now and he is resting peacefully.

Monday was a whirlwind of day for us. Johns Hopkins does an hour long special on the local ABC here in Baltimore as a fundraiser because they are a non-profit organization. The special airs in February and it features 8-10 families within the hospital and kind of follows their story and why they are here. Dr. Gearhart gave them our names, so yesterday morning we were being interviewed and videoed for the special. So if you are in Baltimore sometime in February, turn on the ABC here and you might see our mugs on the television.

Within an hour of finishing up the interview, we had some visitors come and lift Robbie's spirits. His Aunt Mel, Uncle Jer and cousins Bryce, Cayden and Clara made the trip down from New Jersey and really livened up the 6th Floor IMC. It was great for Robbie to see them all and he had a great time playing with his cousins, as much as he could. We then all went down to the Inner Harbor for lunch and they even brought Tana (their Golden Doodle) with them and she got to experience the Harbor. They weren't able to stay too long, but it was great to see them and for Robbie to see his cousins.

Robbie hasn't slept great the last few nights because of this fever and his irritability, but we are hopeful that with the fever gone, he can get the rest that he needs. They are also taking him off the TPN and doing all the feeding through the tube at night and from him eating during the day. He has done a great job of eating for us and we are hoping that he can handle the tube feedings, as they are increasing the amount he gets in the next few days. They need his calorie count as high as possible because he is burning so many calories as his body tries to repair itself.

Things are still going well for all of us and I will make sure to not have anymore days of missing to update the blog.